The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime
CdLS Foundation UK Registered charity number 1054033
"This charity was nominated by John Pugh to show our appreciation for his time on DigitalHealthToday.com, episode 35 (to air 25 July)"
Dan Kendall donated
"Well Josie and Alan love Dad xx"
Dave Locke donated
£5.00 + £1.25 Gift Aid
"cake sales and coffee mornings from my 3 girls schools for awareness day.
lots of baking and awareness raised.
Andrea Baker donated
£395.51 + £0.00 Gift Aid
"For all the little Arthurs xxxx"
Lucy Sarna donated
£10.00 + £0.00 Gift Aid
"On behalf of Nick Thorne Architectural Design."
Nick Thorne donated
£50.00 + £12.50 Gift Aid
"Online fundraising "
Lindsay Brown donated
£30.00 + £0.00 Gift Aid
Bjorn Harris has raised $7,391.99 so far
I'm cycling the one day 300km bike ride for Bjorn Harris because they do amazing work supporting families like ours
Simone Pugh has raised $4,410.03 so far
I'm We are partaking in a 100km trek to raise money for Simone Pugh because the charity needs to raise awareness and funds
Christine Brown has raised $3,126.79 so far
I'm I am raising funds in memory of our daughter for Christine Brown because Natalie passed away suddenly on 10/04/2014
Jacqueline Griffin has raised $2,245.84 so far
I'm creating this page in memory of Steve Penney for Jacqueline Griffin because He was a Founding Trustee of CdLS Foundation
Faye Kett has raised $1,464.80 so far
I'm I am trying to raise vital funds for for Faye Kett because they have helped my daughter Ella so much
Simone Pugh has raised $1,327.20 so far
I'm I am partaking in a 100 mile bike ride for Simone Pugh because we need to raise awareness and funds.
For event partners and companies