The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime
CdLS Foundation UK Registered charity number 1054033
"Thank you so much for your support at the conference and whenever I have a question xx"
Sian Stephens donated
£227.00 + £56.75 Gift Aid
"Donation for lunch at Swindon"
Penny Humphreys donated
£20.00 + £5.00 Gift Aid
Jarvinder Judge donated
"Lunch contribution for Swindon"
jo furlonger donated
"Lunch contribution for Bryan and me and a little bit extra to cover for others."
Kate Cottrell donated
£50.00 + £12.50 Gift Aid
"Donation towards the cost of lunch at the conference next Saturday :-)"
Delia Smith donated
£10.00 + £2.50 Gift Aid
Simone Pugh has raised $4,431.96 so far
I'm We are partaking in a 100km trek to raise money for Simone Pugh because the charity needs to raise awareness and funds
Christine Brown has raised $3,142.34 so far
I'm I am raising funds in memory of our daughter for Christine Brown because Natalie passed away suddenly on 10/04/2014
Jacqueline Griffin has raised $2,257.01 so far
I'm creating this page in memory of Steve Penney for Jacqueline Griffin because He was a Founding Trustee of CdLS Foundation
Jarvinder Judge has raised $1,886.94 so far
I'm Trying to run 13 miles without passing out!!! for Jarvinder Judge because they support and advise on a rare genetic syndrome
Faye Kett has raised $1,472.09 so far
I'm I am trying to raise vital funds for for Faye Kett because they have helped my daughter Ella so much
Simone Pugh has raised $1,333.80 so far
I'm I am partaking in a 100 mile bike ride for Simone Pugh because we need to raise awareness and funds.
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