The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime
CdLS Foundation UK Registered charity number 1054033
"In support of my baby niece who sadly won’t get to spend her first Christmas at home. But she is so loved and she’s so amazingly strong!
This is a great, much needed charity"
Leanne Lara donated
£10.00 + £0.00 Gift Aid
"With special mention to the Ed, Olly, Rachel and Nick Davies"
Jo Ablett and David Jones donated
£50.00 + £12.50 Gift Aid
"This is from the sale of the chocolate bars ! Thanks for all your help. This money from all the Irish Cdls kids."
Melissa Coleman donated
€190.00 + €0.00 Gift Aid
"Hi pleased to donate the money Raised by the Hamble Ramble this Christmas playing carols."
Toby Wright donated
£145.00 + £0.00 Gift Aid
Kieran Moriarty has raised $7,534.40 so far
I'm We're running the Bath Half for Kieran Moriarty because it's a great charity that desperately needs funds
Nick Thorne has raised $4,480.61 so far
I'm Cycling from Seascale to Whitby over big hills! for Nick Thorne because they provide amazing support to CDLS families.
Christine Brown has raised $3,349.02 so far
I'm I am raising funds in memory of our daughter for Christine Brown because Natalie passed away suddenly on 10/04/2014
Jacqueline Griffin has raised $2,405.45 so far
I'm creating this page in memory of Steve Penney for Jacqueline Griffin because He was a Founding Trustee of CdLS Foundation
Jarvinder Judge has raised $2,011.05 so far
I'm Trying to run 13 miles without passing out!!! for Jarvinder Judge because they support and advise on a rare genetic syndrome
Martin Shaw has raised $1,698.03 so far
I'm I’m running the London Marathon for Martin Shaw because It makes a difference and joins families together
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