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The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime
CdLS Foundation UK Registered charity number 1054033
"In support of my baby niece who sadly won’t get to spend her first Christmas at home. But she is so loved and she’s so amazingly strong!
This is a great, much needed charity"
Leanne Lara donated
£10.00 + £0.00 Gift Aid
Nick Thorne has raised $8,956.92 so far
I'm Cycling from Seascale to Whitby over big hills! for Nick Thorne because they provide amazing support to CDLS families.
Christine Brown has raised $3,141.25 so far
I'm I am raising funds in memory of our daughter for Christine Brown because Natalie passed away suddenly on 10/04/2014
Andrew Borge has raised $2,256.22 so far
I'm creating this page in memory of Steve Penney for Andrew Borge because He was a Founding Trustee of CdLS Foundation
Martin Shaw has raised $2,204.46 so far
I'm I’m running the London Marathon for Martin Shaw because It makes a difference and joins families together
Matthew Baker has raised $2,197.83 so far
I'm Running the 2018 London Marathon, yes 26.2 Mile! for Matthew Baker because
Tim Kinch has raised $1,555.57 so far
I'm We are cycling from Lands End to John O'Groats for Tim Kinch because might as well raise some cash whilst being in pain