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Louise Pickard, Lauren Purse, Kerry Kettleton, Nix Wilson-Kivlehan raised £1,065 from 65 supporters
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Closed 29/06/2017
Iʼve raised £1,065 to support Action Duchenne and Muscle Up for Lucas. We are taking part in a record breaking parachute jump on 17th June
- Funded on Thursday, 29th June 2017
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Story
Duchenne Muscular Dystrophy is a fatal, genetic, life-limiting disorder affecting 1 in every 3,500 live male births (around 2,500 people have DMD in the UK at any one time). It results in progressive loss of strength and is caused by a mutation in the gene that encodes dystrophin. The result is loss of muscle use and eventually heart and lung failure. THERE IS NO CURE
In April 2016 it was suggested that our friend's little boy, Lucas, might have Muscular Dystrophy. Ten weeks later it was confirmed that he had the most common but also the most serious form, Duchenne. He had been a late walker, which had originally been put down to hyper mobile joints, but when he started to lag behind his peers with running, jumping, hopping, climbing, his parents suspected something more serious and sought further opinion. Never in their worst nightmares did they ever think their beautiful little boy had a terminal illness. Their world imploded.
All the dreams and ambitions that were had for Lucas have been cruelly destroyed with one swipe by this horrible disease which will probably see him in a wheelchair by 10, before his upper body will begin to shut down, then his heart and lungs begin to fail, almost certainly before he’s 30. The most difficult part – there is no cure, it will happen and his parents are powerless to protect him. So they will just have to make new dreams come true and ensure they give him, and Sophia, the best and happiest lives they possibly can.
Please donate whatever you can in support of Action Duchenne so they can continue their vital research into finding a cure for this illness. Money is also being raised for Muscle Up for Lucas so Lucas can be provided with the best of everything he needs to enable him to manage his illness and live a happy life filled with wonderful memories.
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Louise Pickard, Lauren Purse, Kerry Kettleton, Nix Wilson-Kivlehan started crowdfunding
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Supporters
65
M Kearns
Jun 18, 2017
Well done Kerry on your jump and for such an amazing cause XX
£10.00
Alan Reed & family
Jun 18, 2017
£20.00
Martin & Michelle Gibbons
Jun 18, 2017
Congratulations Ladies we hope it was a great jump! xx
£15.00
Roger Luxton
Jun 17, 2017
Well done girls 🙌🏻🙌🏻🙌🏻
£20.00
MB Keen
Jun 17, 2017
Noleen O'Leary
Jun 17, 2017
Good luck today Nix and all doing the jump, enjoy the experience and such a great way to raise money for such a cause. Well done xx
Janet Kaniklides
Jun 17, 2017
Good luck to you all x
£5.00
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