We did it!
Sacha Beere raised £320 from 13 supporters
or
Start your own crowdfunding page
Closed 16/06/2017
Iʼve raised £320 to Raising money for the Evie Campbell Fund - Alnwick to Assos: A family sailing adventure
- Alnwick, United Kingdom
- Funded on Friday, 16th June 2017
Don't have time to donate right now?
Story
Five year old Evie was diagnosed with Diamond Blackfan Anaemia (DBA) at six weeks old. DBA is a blood condition where the bone marrow fails to produce red blood cells. DBA is a very rare condition effecting only 130 people in the UK, it requires intensive treatment and has no known cure.
Evie is treated with blood transfusions every four weeks to bring her red blood cell count up to an acceptable level. The body normally recycles iron from old red blood cells when producing new ones, but this does not happen in DBA patients. Frequent transfusions cause the accumulation of ecf-logoiron in the body. Iron overload can cause damage to the major organs if not properly managed and so patients must take a “chelation” drug to remove excess iron from their bodies. In Evie’s case she takes an oral drug (Exjade) daily to help reduce her iron overload.
Evie’s bone marrow is failing, she will require a bone marrow transplant in the next 18-24 months. This process can be risky and finding matched bone marrow donors can be very challenging. No donor has yet been found for Evie.
A bone marrow transplant would mean Evie’s bone marrow is replaced with healthy, donated bone marrow and she would no longer be reliant on blood transfusions. This life changing transplant will give Evie the chance to lead a normal life.
Evie’s family need to raise money to fund her bone marrow transplant expenses, costs like travel, accommodation and child care. We have set ourselves a goal of travelling from Alnwick to Assos in Greece, sailing Yves Christian from Plymouth to raise money to add to Evie’s fund. Please give generously for this very good cause.
Thank you.
Lotty and Sacha
Updates
1
Updates appear here
- 7 years ago
Sacha Beere
7 years agoThank you to all of you that donated. We have sent the money onto Evie's parents and we hope it will help towards getting Evie better. Lotty and Sacha X
Share this update to help us raise more
Sacha Beere started crowdfunding
Leave a message of support
Supporters
13
Carl Peterson
Jun 7, 2017
Hope you enjoy the trip and hit your target
£30.00
Suzanne Beere
May 30, 2017
Safe journey.
£30.00
Anonymous
Apr 13, 2017
£10.00
Anonymous
Apr 7, 2017
£10.00
Jo, Ronnie, Alfred and Stanley
Apr 2, 2017
Have a wonderful adventure guys. Say hello to Paxos for us!
£20.00
Nicola Alderson
Apr 1, 2017
A very good cause. Have safe travels you lovely people xx
£20.00
Dean Gordon
Mar 31, 2017
All the best on your travels. A sail through the Med is really amazing. Although I've only done it through work it was still a fantastic thing to do. Isla Gordon's parents.
£20.00
What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Great people make things happen
Do you know anyone in need or maybe want to help a local community cause?
Create you own page and donʼt let that cause go unfunded!
About CrowdfundingAbout the fundraiser
Sacha Beere
Alnwick, United Kingdom
We, Lotty and Sacha live in Alnwick with our two children Hector (5) and Phoebe-Plum (2). We will be joined by Sacha’s two sons Sam (16) and Jack (14) who live in Chester-Le-Street on our sailing adventure to Greece.