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£407raised of £500 target by 25 supporters

Weʼre raising £500 to help prepare for future care and give a bigger voice to Esme who has Rett Syndrome.

Buckinghamshire
19 days to go

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Story

I am trying to raise money for beautiful Esmé. She has been diagnosed with Rett Syndrome. I met her and her family over 5 years ago and prior to her diagnosis. Her condition being a spectrum disorder means that it will effect every child in many different ways. In the harshest case she could wake in the morning unable to walk anymore! She constantly hyperventilates which puts strain on her heart it's not great!

http://youtu.be/m-t2XDSoiwg is her film on you tube.

She needs to have fund raising in place for every eventuality so when the time comes her family can immediately react and buy that piece of equipment or modify their house so she doesn't have to go elsewhere.

Some of you may know that i only took up running at the end of April 2017. I have never been a ‘runner’ in the traditional sense of what people thinks makes a runner. What i have learned though is that being a ‘runner’ is far more than being able to run.

I will be training up to 3 times a week and entering as many races as possible this year to run at least 500 Miles (805km) across the year. It won‘t be easy but it will be worth it.

Here’s more about Esmé - https://www.facebook.com/Esmesallstars/

Here’s more about Rett - http://www.rettuk.org/what-is-rett-syndrome/

Thank you so much for your support.

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Updates

2

  • Alexandra Winn1 year ago
    Alexandra Winn

    Alexandra Winn

    1 year ago
    Update from the Page owner

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  • Alexandra Winn1 year ago
    Alexandra Winn

    Alexandra Winn

    1 year ago
    Update from the Page owner

    Share this update to help us raise more

1 year ago

Alexandra Winn started crowdfunding

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Page last updated on: 12/12/2018 5:55 PM

Supporters

25

  • Greg Heaton

    Greg Heaton

    Dec 12, 2018

    Good luck with the remaining marathon!

    £20.00

  • Isla Rose Thornhill

    Isla Rose Thornhill

    Dec 10, 2018

    Go aunty Alex, almost there! I hope I can do something this inspirational one day xxx

    £10.00

  • June

    June

    Dec 10, 2018

    You've worked so hard for this Alex. Go for it. I know you can do it.

    £20.00

  • Paul Nicholson

    Paul Nicholson

    Dec 9, 2018

    £20.00

  • Anonymous

    Anonymous

    Dec 9, 2018

    You are inspiring and a true friend

    £25.00

  • Becca Hayward

    Becca Hayward

    Dec 9, 2018

    Keep up the good work. Nearly there!

    £5.00

  • Anonymous

    Anonymous

    Dec 9, 2018

    Smashing it!

Alexandra Winn

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About the fundraiser
Alexandra Winn

Alexandra Winn

Buckinghamshire

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