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Alexandra Winn raised £599.07 from 40 supporters

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Closed 31/01/2019

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£599raised of £500 target by 40 supporters

    Weʼve raised £599 to help prepare for future care and give a bigger voice to Esme who has Rett Syndrome.

    Buckinghamshire
    Funded on Thursday, 31st January 2019

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    Story

    I am trying to raise money for beautiful Esmé. She has been diagnosed with Rett Syndrome. I met her and her family over 5 years ago and prior to her diagnosis. Her condition being a spectrum disorder means that it will effect every child in many different ways. In the harshest case she could wake in the morning unable to walk anymore! She constantly hyperventilates which puts strain on her heart it's not great!

    http://youtu.be/m-t2XDSoiwg is her film on you tube.

    She needs to have fund raising in place for every eventuality so when the time comes her family can immediately react and buy that piece of equipment or modify their house so she doesn't have to go elsewhere.

    Some of you may know that i only took up running at the end of April 2017. I have never been a ‘runner’ in the traditional sense of what people thinks makes a runner. What i have learned though is that being a ‘runner’ is far more than being able to run.

    I will be training up to 3 times a week and entering as many races as possible this year to run at least 500 Miles (805km) across the year. It won‘t be easy but it will be worth it.

    Here’s more about Esmé - https://www.facebook.com/Esmesallstars/

    Here’s more about Rett - http://www.rettuk.org/what-is-rett-syndrome/

    Thank you so much for your support.

    Updates

    3

    • Alexandra Winn5 months ago
      Alexandra Winn

      Alexandra Winn

      5 months ago

      Thank you all for your support. I can’t explain how grateful I am. I am now 482 miles into my target. Just 18 to go to make the 500. I’ve got my runs all planned in and feeling good about it!!

      Share this update to help us raise more

    • Alexandra Winn1 year ago
      Alexandra Winn

      Alexandra Winn

      1 year ago
      Update from the Page owner

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    • Alexandra Winn1 year ago
      Alexandra Winn

      Alexandra Winn

      1 year ago
      Update from the Page owner

      Share this update to help us raise more

    1 year ago

    Alexandra Winn started crowdfunding

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    Page last updated on: 12/29/2018 23.00

    Supporters

    40

    • Kay Ison

      Kay Ison

      Dec 29, 2018

      Well done Alex. Fabulous result this year

      £10.00

    • Shalini Watkinson

      Shalini Watkinson

      Dec 29, 2018

      Congratulations Alex. Massive achievement. Well done xxx

      £20.00

    • Debbie Cave

      Debbie Cave

      Dec 28, 2018

      Amazing, I am so proud of your achievement xx

      £10.00

    • David Thornhill

      David Thornhill

      Dec 24, 2018

      Massive well done on your achievement, have a great Christmas. Spud, H & Amelia xx

      £9.00

    • Kirsty Larby

      Kirsty Larby

      Dec 20, 2018

      Many Congratulations on completing your 500 miles Alex, amazing effort :)

      £10.00

    • Andrew Pavey

      Andrew Pavey

      Dec 19, 2018

      Congratulations on reaching 500 miles Alex

      £10.00

    • Jake Johnson

      Jake Johnson

      Dec 19, 2018

      Well done Alex - a brilliant achievement.

      £10.00

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    About Crowdfunding
    About the fundraiser
    Alexandra Winn

    Alexandra Winn

    Buckinghamshire

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