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£183raised of £1,000 target by 11 supporters

Weʼre raising £1,000 to help prepare for future care and give a bigger voice to Esme who has Rett Syndrome.

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Story

I am trying to raise money for beautiful Esmé. She has been diagnosed with Rett Syndrome. I met her and her family over 5 years ago and prior to her diagnosis. Her condition being a spectrum disorder means that it will effect every child in many different ways. In the harshest case she could wake in the morning unable to walk anymore! She constantly hyperventilates which puts strain on her heart it's not great!

http://youtu.be/m-t2XDSoiwg is her film on you tube.

She needs to have fund raising in place for every eventuality so when the time comes her family can immediately react and buy that piece of equipment or modify their house so she doesn't have to go elsewhere.

Some of you may know that i only took up running at the end of April 2017. I have never been a ‘runner’ in the traditional sense of what people thinks makes a runner. What i have learned though is that being a ‘runner’ is far more than being able to run.

I will be training up to 3 times a week and entering as many races as possible this year to run at least 500 Miles (805km) across the year. It won‘t be easy but it will be worth it.

Here’s more about Esmé - https://www.facebook.com/Esmesallstars/

Here’s more about Rett - http://www.rettuk.org/what-is-rett-syndrome/

Thank you so much for your support.

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Updates

2

  • Alexandra Winn8 months ago
    Alexandra Winn

    Alexandra Winn

    8 months ago
    Update from the Page owner

    Share this update to help us raise more

  • Alexandra Winn8 months ago
    Alexandra Winn

    Alexandra Winn

    8 months ago
    Update from the Page owner

    Share this update to help us raise more

8 months ago

Alexandra Winn started crowdfunding

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Page last updated on: 6/27/2018 8:37 AM

Supporters

11

  • Victoria Cherry

    Victoria Cherry

    Jun 27, 2018

    Well done Alex! Good luck with the rest of this years running for Esme 💖

    £10.00

  • Andy, Carine, Amelia & Myla

    Andy, Carine, Amelia & Myla

    Mar 23, 2018

    A truly amazing cause, well done for all the miles so far and the miles to come will only become easier 😁👍🏃🏽‍♀️🏅x

    £13.10

  • sarah james

    sarah james

    Mar 19, 2018

    Keep going Alex. You are doing so well and I am very proud of what you have achieved already. You go for it girl! love Sarah x

    £10.00

  • Anonymous

    Anonymous

    Mar 18, 2018

    Well done Alex....you’re doing brilliantly !!....and for such a wonderful cause xx 😄

  • karen jones

    karen jones

    Feb 27, 2018

    £10.00

  • Holly Gregory

    Holly Gregory

    Jan 25, 2018

    Great cause Alex, you will smash your target! Xx

    £20.00

  • Tina Meller

    Tina Meller

    Jan 22, 2018

    Good luck

    £5.00

Alexandra Winn

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Alexandra Winn

Alexandra Winn

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