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amie sainsbury raised £1,282 from 53 supporters
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Closed 26/03/2019
Iʼve raised £1,282 to We want to give Callum the send off he deserves
- Brynmawr, Ebbw Vale, UK
- Funded on Tuesday, 26th March 2019
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Story
W
Callum was born healthy by c section due to being breach he was fine till he was five weeks old then the reflux came and the fits he was having nineteen fits a day witch ended up in hospital for 3mths after all test lumber punchers and scans the put it down to epilepsy
So was on a lot of meds and still is now we he did have a massive fit that nearly lost is life to it was not nice so after that his fits was more controlled so they let him come home
About 2years after that we found out that it wasn't just epilepsy it was a rare form of epilepsy called ohtahara syndrome the doctor explained the it come with limited life but it not the epilepsy that could kill him it's the recurring chest infections that would it was hard for my husband to take in that we could lose our boy Callum but I explained it to him and he understands now
Days weeks go on we started learning about Callum conditions he has unsafe swollow so he had to have peg fitted due to that he has got cerbral palsy scholiosis curvature of the spine
Twisted neck suplication of the general head
Callum has been ventilated 5 times due to his chest he had rhino virus pnamoniea fluied on the lungs
Callum
Callum has lost a lot of his family member is aunties and his grandad who he was very close to
I hope I covered it all any questions please feel . ted Callum t to erves f o give
Updates
3
- 6 years ago
amie sainsbury
6 years agoOmg I'm overwhelmed I'm crying
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- 6 years ago
amie sainsbury
6 years agoWow this is amazing thank you so much
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- 6 years ago
amie sainsbury
6 years agoStill a long way to go come on guys let's do this
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amie sainsbury started crowdfunding
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Supporters
53
Stacey Lewis
Jan 4, 2019
Money raised from the raffle. God bless for today xxx
£157.00
Anonymous
Dec 22, 2018
Lisa Moriarty
Dec 21, 2018
You now have hit your target 👍🏻 Love you Callum sleep tight baby boy 💙💙💙
£35.00
Alyson Dale
Dec 21, 2018
Thinking of you all at this sad time. Fly high Callum xx
£20.00
Janet BORG
Dec 21, 2018
Sorry it's not much. Hope it helps. Thinking of you all. From Jan bill ad family Xxx
Jen E
Dec 20, 2018
Thinking of you all at this difficult time ❤️
£30.00
Lisa Moriarty
Dec 19, 2018
From TLC raffle 😘
£10.00
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