I'll try and keep this fairly short… When my beautiful niece Jersey was about 6months old we found out that she had a duplicated chromosome, a very rare condition. At this point, there were only 14 others IN THE ENTIRE WORLD with this exact duplication!!! After seeing Jersey's paediatrician and geneticist we were told that Jersey was unlikely to walk, talk or even recognise the difference from her Mummy to a random stranger . She would need to have her organs tested as her condition had shown that some didn't function properly, including her sight and hearing, the list of negative things connected to this condition seemed endless 😥😥

After 4-5months of going through the normal channels as to what was on offer for Jersey, her parents decided to look into alternative therapies. They sought out others with Jersey's condition and those that have done ABM neurodevelopment, Cuevas Medek therapy and SMILE they have managed to make huge progress in catching up with the "normal" milestones!!

They have travelled endlessly up and down the UK working with the few practitioners that offer these therapies and Jersey has responded so well to these! However, the BEST progress has happened with practitioners overseas and in 2020 they were very priveleged to take Jersey to America. Since attending a block intensive course and bringing the programme back home, Jersey has progressed immensely despite what was said, she can walk!

2 years on and she has plateaued a little but there's progress still to be made which is why we are looking for Jersey to attend another block intensive. These therapies are not NHS recognised… they are paid for by ourselves and this is why we are doing the GNR on Sunday 11th September 2022. I'm so proud to say Jersey will also be doing the Great North Mini, Saturday 10th September (at her own pace) considering we were once told not to "waste our time and money on these therapies and put the money towards a better wheelchair for her as she gets older!" This is such an achievement.

We will never give up striving for these opportunities for Jersey to access these alternative therapies!

Over the last two years, Jersey has worked so hard by doing her exercises most days. She has shown amazing determination and resilience and we just want to build on this.

If you would like to sponsor us, the money raised will be going towards the next stages of Jersey's therapy.

Thank you for your support!!!