My son Hudson was born on 17th August 2013 with a rare chromosome disorder called 1q43-q44 deletion syndrome. He has seizures, is developmentally delayed, is non-verbal and is not mobile. As Hudson is growing, we are finding it more and more difficult to go on family days out and enjoy activities that most families can do with ease.
On Sat 9th September I am partaking in the Tough Mudder at Cholmondeley Castle in order to purchase a special buggy which can be used for off road walking, running and cycling. So we can make Hudson's life more comfortable and fun! This will in turn make Hudson's big brother, Charlie's life more fun as currently, he misses out on a lot of things that young boys should be entitled to i.e. running about in the countryside