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Arlos Angels raised £3,070 from 111 supporters
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Closed 02/03/2018
Iʼve raised £3,070 to To help Arlo fight the impossible rarest form of child interstitial lung disease and try to ease the huge financial impact on the family.
- Kings hospital London
- Funded on Friday, 2nd March 2018
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Story
Thank you all for taking a few minutes to read about an incredible boy called Arlo
After a textbook, full-term pregnancy Arlo was born at a healthy 7lbs1oz. Sadly due to breathing difficulties he was admitted straight to NICU from theatre, and intubated within 24hours with suspected pneumonia.
Agonising weeks passed with endless tests, confusing results and baffled doctors, until finally we received the exceptionally rare diagnosis of surfactant ABCA3 deficiency. For those like us who are clueless to what this is, it is one of the rarest forms of child interstitial lung disease (chILD). This means that whilst Arlo is otherwise perfectly formed, his lungs cannot perform unsupported: leaving him totally dependent on a ventilator.
As it stands Arlo is a permanent resident of Paediatric Intensive Care Unit (PICU) at the King’s College Hospital London. His specific strain is so rare it has never been seen in the UK before, with only 200 documented cases globally; and along with the doctors, we have no idea what his specific journey will hold. All we do know is that there is no cure. Although uncertain, it seems the most likely path is continued mechanical ventilation whilst we try to grow him as beefy as possible to strengthen his lungs, with the hope that as he grows his oxygen requirements reduce to a level where home ventilation is possible.
So now you know a bit of Arlos story he is truly a amazing happy handsome little chap who makes you smile by just looking at him
Arlos amazing family by the way just make you so humble they do not moan or winge they just get on with life and whats thrown at them including a tree that fell on top of their car that was parked at the hospital and they even manage to tell that story with a smile and a giggle they really are inspirational including Arlos two brothers luca and sonny again whos lives have been turned upside down but they are right there by his side.
So i thought i could do some fund raising and decided the only thing i could maybe be good at was running so rather than the usual 5 or 10k i thought lets push to a half a marathon and to my astonishment some of my amazing big hearted (bit crazy) friends have decided to join me, we will be running the Hampton court half a marathon on the 18th February 2018 so if you could please be so kind and help us raise anything we can !!!! any donation no matter how small is greatly appreciated.
lot’s of love 💖
Amy, Andrea, Jemma, Nikki, Robert, Stacy & Vicky xxxxxx
Updates
6
- 7 years ago
Arlos Angels
7 years agoShare this update to help us raise more
- 7 years ago
Arlos Angels
7 years agoWe are two weeks and one day away from our half a marathon we would like to thank you all so much for your support and donations let’s see if we can get to our home target 😘😘😘
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- 7 years ago
Arlos Angels
7 years agoYour support is still coming!!!! It is all so very greatly appreciated honestly can’t thank you all enough 😘😘😘
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Arlos Angels started crowdfunding
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Supporters
111
PETER NOLAN
Mar 2, 2018
Well done Stace x
£20.00
Claire Room
Mar 2, 2018
Well done xxx
£20.00
Lucy Wiggins
Feb 26, 2018
£20.00
Rebekka Gough
Feb 24, 2018
Well done girls!! 😘😘 Xx
Natasha Ting
Feb 23, 2018
Well done Stacy and team, sending best wishes to baby Arlo and his amazing family.
£10.00
Michael Pinney
Feb 22, 2018
Well done Andrea and best wishes to little Arlo and his family xxMike & Debbie (Trichem)
£100.00
Lilly Steel
Feb 21, 2018
Well done to all Arlos Angels! You done us proud! Lots of Love, Lilly & Anna xxx
£20.00
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