Dude's Story 💙

On 26th April 2022 after many tests and scans, our beautiful, smiley boy, Dude was diagnosed with 4H Leukodystrophy POLR3B. This is a rare degenerative disease that affects the nervous system and means he will slowly lose the ability to walk, talk, hear, eat or do anything for himself.

It will come to a point where we will never see our smiley boy, smile or laugh again. Our hearts break as there is no cure for this life-shortening and cruel disease. Such devastating news for a little boy only 4 years old.

We have set up this page to allow anyone to donate and help us give him the best life that he so deserves. Hoping to raise enough for his family to take him to Disneyland, a once in a lifetime opportunity for them to always remember.

This will help get Dude to specialist Doctor appointments and conferences in America and Amsterdam

Making memories as a family is our main aim while Dude is still able to enjoy every minute of every day

https://www.youtube.com/watch?v=eAb5l2DBHhs