Charlotte, Sam and Hannah will be running the Tough Mudder half on Saturday 19th August and would love you to sponsor us!

We are running to raise money for Charlotte’s awesome friend’s Zoe and Craig and their son Henry.

Zoe and Craig needs to raise approximately £50,000 to pay for IVF treatment so her son Henry can have a bone marrow transplant from a matched sibling.

Henry was born in November 2015 after Zoe was told she would not be able to have children and after a difficult pregnancy little Henry was given a 20% chance of survival. He spent three weeks in the NICU and fought for his life.

In March 2016, following 10 blood transfusions, a bone marrow biopsy and genetic testing, Henry was diagnosed with Diamond Blackfan Anaemia (DBA), an extremely rare genetic disorder meaning his bone marrow does not function properly so he cannot make his own red blood cells. Henry is unique, not only does he have a faulty DBA gene, but he is the only person EVER to also have a faulty myelodysplasia gene, making it likely that he will develop leukaemia.

Since then, Henry has had countless procedures requiring a lot of time in hospital. He has to have a blood transfusion every 3-4 weeks to stay alive and daily medication to get rid of the excess iron stored in his organs but this is not a good long-term option for him. Henry's best chance at a long and healthy life is to have a bone marrow transplant.

Because of the risks involved, the doctors have said this is only possible if the transplant comes from a sibling who has the same tissue type as Henry (stem cells from the umbilical cord so no harm to baby!). This means we will need IVF to ensure the sibling is a match with Henry's cells and also does not carry the same gene mutations as he does.

The NHS have refused to fund this so Zoe and Craig need to raise the money themselves and need everyone’s help!

Thank you so much for your support!!

Charlotte, Sam and Hannah