We would love to give the family some memories that they can hold in their hearts forever. Tony as a colleague and a friend could not be more supportive himself. The money raised will go towards fun days out for the family. We want to be able to get them on as many as we can before his muscles start to deteriorate and unfortunately, he may end up in a wheelchair by the time, he is 11. This condition can also reduce Freddie’s life expectancy by a considerable amount. Freddie and his family live within Guildford and I would really love for our community to be able to go that extra mile for them to be able to enjoy some great things as a family. We would like to support him and his family during their journey. Please read their story in their own words below:

From Freddie's parents:

This is Freddie, he is a happy, energetic and loving 6 year old boy. Just before Christmas last year he was diagnosed with a muscle-wasting condition called Duchenne Muscular Dystrophy. The diagnosis came as a complete shock to us and at the time we knew nothing about the condition, Freddie has always struggled with his mobility but we had always put it down to hypermobility as this is what we had always been told. It was only when we saw a developmental paediatrician and they noticed his large calf muscles that he was then tested for the condition.

When we found out the results and that he had been diagnosed it felt like our whole world got turned upside down, knowing that our little boy wasn't going to have the life that we had dreamed for him.

To look at him you would think there's nothing wrong and that he's just your typical 6 year old boy, but know all that one day will change is just heart-breaking. Until that time comes all we can do is continue to have fun and making as many happy memories as possible.