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Sarah Beall raised £10,722.38 from 335 supporters
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Closed 22/03/2019
Iʼve raised £10,722 to help fund major lifestyle changes, treatment and equipment for George to prolong his life living with SMA type 1
- Hoddesdon, Hertfordshire, United Kingdom
- Funded on Friday, 22nd March 2019
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Story
It was both Mark and Jayne’s dream to be parents, but this was a challenge for them as they were unable to conceive naturally. After many years, IVF/ICSI was the only option.
Miracles do happen and George was born on the 2nd October 2017, Jayne, Mark, family and friends were over the moon on the arrival of a gorgeous, happy, smiley baby boy.
George passed all his 6 weeks checks and Jayne and Mark were preparing for their first Christmas as a family. Sadly, at the beginning of December, George contracted a virus and was extremely poorly, he struggled to eat and was struggling to breathe, so, George was taken to A&E for routine tests and an IV course of antibiotics.
It was during this time that consultants became concerned about George’s muscle strength, George was still struggling to swallow and drink which prompted consultants to test George for SMA Type 1.
Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive muscular weakness and loss of movement due to muscle wasting (atrophy). This may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing.
SMA Type 1 is the most severe form of SMA. Sadly, without intervention most children with SMA Type 1 rarely survive beyond two years of age.
Spending Christmas and New Year in and out of hospital , Jayne and Mark waited some agonising two weeks for the test results. On the 4th January the results were in and Jayne and Mark received the devastating news that George had the genetic disease SMA Type 1.
Left to digest this heart-breaking news over the weekend, they refused to accept this without a fight! George was special... another IVF miracle! Science created George and Jayne and Mark are determined that science will save him!
Please help Jayne and Mark raise money to fund major lifestyle changes and the necessary treatment and equipment for George that will help prolong his life!
Updates
12
- 7 years ago
Sarah Beall
7 years agoMummy and daddy have been busy raising awareness of SMA, they have been on the radio and held an event with 260 people! They are buying me a seat so that I can sit up, so proud of them xxxx
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- 7 years ago
Sarah Beall
7 years agohttps://www.hertfordshiremercury.co.uk/news/hertfordshire-news/hoddesdons-incredible-response-new-born-1270056
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- 7 years ago
Sarah Beall
7 years agoTHANK YOU FOR YOUR DONATIONS LOVE GEORGE XX
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Sarah Beall started crowdfunding
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Supporters
335
michaela baranowski
Feb 28, 2019
£5.00
Anonymous
Feb 15, 2019
Ann McGowan
Feb 6, 2019
George is such a beautiful happy boy - always seems to be smiling xx
£10.00
Marisa Pereira
Feb 2, 2019
£10.00
Peter Sandell
Jan 16, 2019
Good luck with the fundraising; Jo told me all about it.
£50.00
Ann McGowan
Jan 5, 2019
For George!
£10.00
Samuella Barber
Aug 14, 2018
We love you George. From the jolly fisherman staff xxx
£108.00
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