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£10,607raised of £50,000 target by 329 supporters

Weʼre raising £50,000 to help fund major lifestyle changes, treatment and equipment for George to prolong his life living with SMA type 1

Hoddesdon, Hertfordshire, United Kingdom

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Story

It was both Mark and Jayne’s dream to be parents, but this was a challenge for them as they were unable to conceive naturally. After many years, IVF/ICSI was the only option.

Miracles do happen and George was born on the 2nd October 2017, Jayne, Mark, family and friends were over the moon on the arrival of a gorgeous, happy, smiley baby boy.

George passed all his 6 weeks checks and Jayne and Mark were preparing for their first Christmas as a family. Sadly, at the beginning of December, George contracted a virus and was extremely poorly, he struggled to eat and was struggling to breathe, so, George was taken to A&E for routine tests and an IV course of antibiotics.

It was during this time that consultants became concerned about George’s muscle strength, George was still struggling to swallow and drink which prompted consultants to test George for SMA Type 1.

Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive muscular weakness and loss of movement due to muscle wasting (atrophy). This may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing.

SMA Type 1 is the most severe form of SMA. Sadly, without intervention most children with SMA Type 1 rarely survive beyond two years of age.

Spending Christmas and New Year in and out of hospital , Jayne and Mark waited some agonising two weeks for the test results. On the 4th January the results were in and Jayne and Mark received the devastating news that George had the genetic disease SMA Type 1.

Left to digest this heart-breaking news over the weekend, they refused to accept this without a fight! George was special... another IVF miracle! Science created George and Jayne and Mark are determined that science will save him!

Please help Jayne and Mark raise money to fund major lifestyle changes and the necessary treatment and equipment for George that will help prolong his life!

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Updates

12

  • Sarah Beall9 months ago
    Sarah Beall

    Sarah Beall

    9 months ago

    Mummy and daddy have been busy raising awareness of SMA, they have been on the radio and held an event with 260 people! They are buying me a seat so that I can sit up, so proud of them xxxx

    Update from the Page owner

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  • Sarah Beall10 months ago
    Sarah Beall

    Sarah Beall

    10 months ago

    https://www.hertfordshiremercury.co.uk/news/hertfordshire-news/hoddesdons-incredible-response-new-born-1270056

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  • Sarah Beall10 months ago
    Sarah Beall

    Sarah Beall

    10 months ago

    THANK YOU FOR YOUR DONATIONS LOVE GEORGE XX

    Update from the Page owner

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1 year ago

Sarah Beall started crowdfunding

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Page last updated on: 8/14/2018 11:23 PM

Supporters

329

  • Samuella Barber

    Samuella Barber

    Aug 14, 2018

    We love you George. From the jolly fisherman staff xxx

    £108.00

  • Ellen Nichols

    Ellen Nichols

    Jul 19, 2018

    £10.00

  • Claire Hope

    Claire Hope

    Jun 28, 2018

    From Waynes Horses

    £10.00

  • Wayne Ward

    Wayne Ward

    Jun 23, 2018

    £20.00

  • Andy Whittaker

    Andy Whittaker

    May 20, 2018

    Rye House pub

    £402.00

  • Steven Robinson

    Steven Robinson

    May 15, 2018

    All the best George. Hope you are feeling better. Robbo&Vicki xx

    £200.00

  • Samuella Barber

    Samuella Barber

    May 2, 2018

    All our love from the jolly fisherman. Xxx

    £86.07

Sarah Beall

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About the fundraiser
Sarah Beall

Sarah Beall

Hoddesdon, Hertfordshire, United Kingdom

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