On Friday 31 October 2014 at 10:11am, Scot and Claire welcomed Ariana Hope Barlow into the world weighing 4lbs 5.5oz.

They had known throughout the pregnancy that Ariana was going to be poorly, however as they had declined invasive testing, they were unsure of how poorly Ariana would really be.

Ariana's scans had displayed a few markers for a chromosomal abnormality such as Downs or Edwards' Syndrome.

Edwards' Syndrome is a genetic condition also known as Trisomy 18 which means that a baby is born with three copies of chromosome 18 as opposed to two copies. This causes a severe disruption in the baby's normal course of development. This is a rare condition that affects only one in up to 6000 live births and is life limiting.