David Lote

#161MilesForJacob

Fundraising for UNIQUE (Rare Chromosome Disorder Support Group)
£3,676
raised of £1,610 target
by 190 supporters
Donations cannot currently be made to this page
Please support our Coronavirus Crisis Appeal to help us bridge the gap between our loss of fundraising income and the increased demands for our services during the Coronavirus Crisis. We need your help to support vulnerable families. Thank you.

Story

Jacob is 3 years old and is the most loving boy you can ever meet, he was diagnosed with an incredibly rare disease which falls under the KAT6B gene, the SBBYS syndrome is one of the syndromes that is under the KAT6B umbrella. It can cause under active thyroid, intellectual disability, hypotonia, heart and kidney anomalies and problems with sight and hearing.


My aim, along with family and friends is to run 161 miles in the month of July in support of him and the charity, this is the distance from his home to Unique's HQ.

Please donate generously where you can :) Thanks for your support.

About the campaign

Please support our Coronavirus Crisis Appeal to help us bridge the gap between our loss of fundraising income and the increased demands for our services during the Coronavirus Crisis. We need your help to support vulnerable families. Thank you.

About the charity

Unique provides much needed help and information to those caring for a family member with a rare chromosome or single gene disorder. These are lifelong conditions affecting at least 1 in 200 babies, causing disability and medical issues. For more information see www.rarechromo.org
Find out more about fundraising with JustGiving

Donation summary

Total raised
£3,675.28
Online donations
£3,675.28
Offline donations
£0.00

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