For us, donations isn’t the main reason we’re taking these steps to speak out about this (although they do help very much with research!) We’re speaking out because as some of you may well know our gorgeous, precious, beautiful, happy, intelligent little girl has got Nystagmus herself.

Her diagnosis was something extremely tough for our whole family to all accept, purely because we didn’t know and still don’t know how this is going to affect her growing up.

All we ask, is if you don’t know, PLEASE get to know!!! There’s such little awareness for Nystagmus, yet as a family and for Amelia it has been the biggest challenge over the last 11 months, and really has dominated all of our thoughts day in, day out.

Even just google and read what Nystagmus is, something as little as that is a start!

So please, from our family to yours, just take a little look. It’ll mean more than anything.

Myself,  Amelia and a few other family members will be walking 20,000 steps on the 20th June in order to raise some awareness for the Nystagmus Network.

A donation no matter how big or small - all helps in more ways than you think is possible.

Love Harry, Lauren & Our Millie ♥️