Delphine Pages
Austin NKH nugget challenge
Fundraising for Joseph's Goal
Story
On the 29.02.20, we'll each eat a silly number of chicken nuggets!
Two Levels: Supreme (100 nuggets, sponsored at £1 each), Extra (50 nuggets, sponsored at £2 each).
The rules:
- Each nugget eaten must be sponsored
- You must eat all your nuggets (as long as common sense dictates its safe to do so)
- You can use as many sauces as you like
- you source your own chicken nuggets (100 is £20 from McDonalds, conveniently delivered by Uber Eats, or your can pick some up from the freezer section of your supermarket to cook at home)
- You must not leave the table till you finish your nuggets or you yield.
- You can be anywhere in the world (we’ll get together in Austin)
- You must take a fifteen second video (on your phone, landscape please) of how you're feeling every ten nuggets, and upload it to a shared folder (will mix a quick promo video for sharing). If you can not finish your sponsored nuggets, you must donate an additional £1 per nugget not eaten.
We're raising money for NKH Research.
Nonketotic Hyperglycinemea (NKH) is a rare and terminal metabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage.This is shown as seizures, severe global developmental delay (delays in physical, intellectual and social development), low tone, causes children to be severely disabled. Joseph's Goal supports Prof Nick Greene at UCL in London, who is the closest to a clinical trial for gene replacement therapy - a treatment which would radically improve the quality of life of kids with NKH. Because NKH is so rare and is funded by families, every single penny helps. Every single pound raised has a tangible effect on what can be done. The funds raised by families last year sped up research by 18 months - this is significant, when 80% of children with NKH don't see their first birthday.