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Emma Hartley

Dylan and Eilys do the Manchester Colour Run for ACT for SMA

We are doing the Manchester Color Run for ACT for SMA because Eilys has SMA type 1

1068 %
£1,068.00
raised of £100 target
by 73 supporters
Donate
  • Team members: Mummy and Daddy are doing it too ;)
  • Event: The Color Run Manchester 2016, 02 Jul 2016

ACT for SMA

The Ally Cadence Trust provides emotional and financial support to children affected by Spinal Muscular Atrophy Type 1, the leading genetic killer of under 2's with an average life expectancy of just 8 months. Children with SMA have very limited movement and may have breathing difficulties

Charity Registration No. 1133272

Story

Eilys was diagnosed with SMA type 1 when  she was 6 months old. Since her diagnosis she has been doing lots of lovely experiences with her family. Now Eilys is 1 and to celebrate we have added "raise money for charity" to her list and we thought the color run looked like fun! Dylan and Eilys will be doing the color run with Mummy and Daddy. It's a 5K run and we are going to try our best to win :)

What happens at The Color Run?

Thousands of Color Runners start the day in a white t-shirt, getting covered from head to toe in a rainbow of colours at each kilometre of the course. Oh and did we mention you don't even have to run? You can choose to walk, skip or dance your way around if you feel like it. It’s all about the fun and what gives you the biggest smiles!

Thanks for taking the time to visit my JustGiving page.

Thanks for the donation. Big hugs and loves xxx

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