Françoise Barber

Francoise and John's page

Fundraising for The SMA Trust
£982
raised of £200 target
by 39 supporters
Donations cannot currently be made to this page
Event: Cotswold Way MAD Challenge, from 20 June 2015 to 21 June 2015
In memory of Lily Beatrice Razzell
The SMA Trust

Verified by JustGiving

RCN 1097765
We fund research into SMA to help find a cure and treatments

Story

Thank you for taking the time to visit our JustGiving page and donating to this cause which is very close to our hearts. We lost our beloved grand-daughter Lily Bea to SMA, when she was only nine months old. Although classified as rare, SMA is the leading genetic killer of infants and toddlers. One in 40 to 60 people is an SMA carrier, i.e. approximately 1.5 million people in the UK. One in every 6,000 to 10,000 births is affected by SMA.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

About the charity

The SMA Trust

Verified by JustGiving

RCN 1097765
SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Donation summary

Total raised
£982.00
+ £238.00 Gift Aid
Online donations
£982.00
Offline donations
£0.00

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