Story
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I’m running the London marathon! It would mean so much if you understood why I’m doing this. Please donate if you can.
As a child I remember going on family days out and always waiting in the loos for my sister to come out, having to cut days out short because she was too poorly. Slowly the family days out started to turn into days in, or days out at the hospital. We had no idea what was wrong, after a few years of lots of tests, different diets, hospital admissions we finally had the answer, Crohn’s disease. My big sister was diagnosed with a life long condition. We started to educate ourselves on what we can do to help, how to move forward. After lots of different meds, steroids, immune suppressants she was finally “stable”…on the outside anyway. The thing is with chrons, being diagnosed with something that is going to be with you for the rest of you life, effects your life daily, at a young age is so damaging to your mental health ( along side all of this we were both losing our hair due to a condition called alopecia). I watched my sister battle with anxiety and depression for years all while people said “you look fine” “just watch what you eat” or, “it could be worse” fast forward a few years, with a few hospital admissions, hospital days for check ups, surgeries brings me to 2022. The year my life changed forever. I was diagnosed with Crohns Disease age 23. I was suffering for a few years going back and fourth go to GP, just like my sister was. Trying different diets and lifestyles only to find myself 5 years later in the same position as my sister. I had my first hospital admission in April 2023 where I had lots of test and scans. I had discovered a fistula, I was on antibiotics and steroids for months, this played havock with my joints, skin, weight and mental heath. I was off work for a few months and finally After further tests and scans I was diagnosed with crohns and perianal crohns. Currently I am currently on an infusion every few weeks of a drug called infliximab. I am now “stable” only to be left with truma from hospital stays and visits the sheer worry every day of what is next, where’s the nearest loo, what if I don’t make it, I can’t eat that, exhausted by my mental health, worrying about my physical health. This is something I will never escape… so it’s time. Time to take charge and show to myself that I am in control. I will not let crohns disease control my life. All whilst supporting a charity that continue to help me and my family answering all questions the the GP can’t help me with, my endless source of hope!
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