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Jenny Cole avatar
Jenny Cole

Jen goes Up at the O2 for EDS UK

I am doing a wheelchair climb over the O2, London for Ehlers-Danlos Support UK because they give me, and many others, invaluable support

270 %
£270.00
raised of £100 target
by 14 supporters
Donate

Ehlers-Danlos Support UK

We educate, inform and raise awareness to support those living with Ehlers-Danlos

Charity Registration No. 1157027

Story

*Please be aware - I hope to do my wheelchair climb on the 7th September 2016. However, if the weather is unsuitable, the date will have to be rearranged. I will definitely be doing it at some point though, and will keep you up-to-date!*

I have had health problems for most of my life, with my health deteriorating significantly at the age of 15. However, I wasn't diagnosed with Ehlers-Danlos Syndrome Type 3 (Hypermobility Type) until a couple of years ago.

It affects most of my body. I experience severe pain and fatigue on a daily basis, which means I use a walking stick and a wheelchair to get around. It has also made me develop a number of other illnesses. I have something called PoTS (Postural Orthostatic Tachycardia Syndrome) which leads me to feel faint, dizzy and have difficulty controlling things like my temperature, heart rate and blood pressure.

I also have Gastroparesis and Intestinal Dysmotility, which means food doesn't move through my digestive system in the way it should. I experience nausea, sickness, pain and feel full very quickly, and it makes it very difficult for me to eat and absorb my food. I therefore rely a lot on nutritional supplements and have been tube fed as well.

It has also affected my bladder, so I now have to self-catheterise, and am currently waiting for further treatment. There are a variety of other symptoms and issues as well, but these are some of the main ones to give you an idea of what it is and how it affects my body.

EDS UK are a brilliant charity, offering people with EDS support and information about an illness that is very misunderstood. I would really love to give something back to them for the help they have given me so far. EDS cannot be cured, and I am likely to have difficulties for the rest of my life, so knowing there is a charity out there to support me means an awful lot.

Thanks for taking the time to visit my JustGiving page.

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