John Lamin

John's SMIKE for Battle Batten

Fundraising for Batten Disease Family Association
£820
raised
by 28 supporters
Donations cannot currently be made to this page
Batten Disease Family Association

Verified by JustGiving

RCN 1084908, SC047408
We fund research and support families to find a cure to Batten disease

Story

Thanks for taking the time to visit my JustGiving page.

In 2005 Hucknall twins Freddie and Louie were born perfectly normal to friends of mine, Sarah and Andrew. In 2007 they were diagnosed with autism and a few years later they became completely blind.

Batten disease is a cruel degenerative neurological condition. There has been no research since 2008 because not enough people suffer with it. Scientists are waiting to carry on research, they just need £20,000 to start. I am helping them to get there. Please read their incredible story at www.battlebatten.com, and help me raise as much as possible.

About the charity

Batten Disease Family Association

Verified by JustGiving

RCN 1084908, SC047408
Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Donation summary

Total raised
£820.00
+ £181.25 Gift Aid
Online donations
£820.00
Offline donations
£0.00

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