Katie Lamb

Becky's & Katie's Page

Fundraising for ACT for SMA
raised of £500 target
by 9 supporters
Donations cannot currently be made to this page
Event: Derby Ramathon 2018, on 3 June 2018

Verified by JustGiving

RCN 1133272


Thanks for taking the time to visit my JustGiving page.

Grace Elizabeth Sinclair has a very rare genetic disorder called Spinal Muscular Atrophy (SMA) Type 1. This condition affects the nerves responsible for muscle function and there is no cure. SMA causes muscle wastage, and even though Grace has been able to access a new treatment, she will never be able to sit or walk and she has lost the ability to swallow so is PEG fed. There are 4 types of SMA with Type 1 being the most severe. Only 5% of babies with Type 1 reach their second birthday- Grace is currently 21 months old.
When Allyson and Neil, Grace’s parents, received the news of Grace’s diagnosis, Grace was a healthy baby and it was very hard to comprehend the diagnosis and what the future would bring. ACT for SMA were on hand and they ensured they visited the family as soon as possible. They provided a range of equipment free of charge such as an adapted car seat, an adapted pram, a camera, a go-pro camera, a set of fibre optic lights and a range of sensory toys for Grace. They were also on hand to answer any questions Neil and Allyson had about SMA and their future.
ACT for SMA are still on hand to offer support for the Sinclair family whenever they require it.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

About the charity


Verified by JustGiving

RCN 1133272
The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

Donation summary

Total raised
+ £51.25 Gift Aid
Online donations
Offline donations

* Charities pay a small fee for our service. Find out how much it is and what we do for it.