Kerry Phillips

Kerry and Mikes January challenges for Jude

Fundraising for The Schinzel-Giedion Syndrome Foundation
raised of £250 target
We raise awareness and support research to improve the lives of children with SGS


My godson, Jude, was diagnosed with Schinzel- Giedion Syndrome shortly after he was born in July 2018. It is an extremely rare condition and means he is almost completely blind, deaf and has limited neurological functions. It is a life limiting condition and brings many challenges for day to day life, which is hard for the whole family. The SGS charity was set up by Judes Mummy along with other SGS parents to try and improve research and offer support to those living with this rare disorder. This is going to be a tough one for me but nothing compared to the sheer bravery and strength of Jude. 💙

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About the charity

Our mission is to provide support to families caring for a child with Schinzel-Giedion Syndrome (SGS), to raise awareness of SGS and to facilitate and support vital medical research that will improve the quality and length of life of children living with this life-limiting, rare genetic condition.

Donation summary

Total raised
+ £127.00 Gift Aid
Online donations
Offline donations

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