Leighton Edwards

Greg, Leighton, Lydia & Natalie are running for Louis Murdoch the Bravest Boy we know

Fundraising for ACT for SMA
raised of £500 target
by 58 supporters
Donations cannot currently be made to this page
Event: Cardiff Half Marathon 2015, on 4 October 2015
Participants: Greg Murdoch & Lydia Perkins

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RCN 1133272


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Myself, Greg Murdoch (Louis Dad|) & Lydia Perkins are running the Cardiff half marathon 2015 for a Fantastic Charity The Ally Cadence Trust for Spinal Muscular Atrophy who protect and promote the physical and metal health of sufferers of spinal muscular atrophy and their families across the United Kingdom through the provision of support, education and practical advice and funding into research into the condition.

Ally Cadence was the daughter of Emma & Karl the founders of the Ally Cadence Trust for Spinal Muscular Atrophy (ACT for SMA) She died aged six months, just 12 days after being diagnosed. In the 12 short days after Ally diagnosis, her family had a lot of support from NHS, but they never got to meet their allocated SAM support family, They would have been the one point of contact that could see things from a parents point of view and it was this that inspired Ally's parents  set up ACT for SMA. They felt that parents with recently diagnosed children deserved a quick response for support and information. The answer was the Ally Cadence Trust.

1We will be running the Cardiff Half Marathon on 4th October 2015 to raise money for this fantastic charity. This is a charity very close to our heart because we have a family member Louis Murdoch (Greg's son) with this life limiting illness and know first hand what a great charity this is. 

We want help to raise awareness and also to give some financial help which will hopefully aid their research to finding better treatments or even one day a cure for SMA.

Please help us to raise money by donating generously  for this fantastic charity to allow them to continue in their incredible research.

We will be aiming to run as fast as we possibly can ignoring any aches and pains thinking about the bravest little boy we have ever known.

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About the charity


Verified by JustGiving

RCN 1133272
The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

Donation summary

Total raised
+ £248.75 Gift Aid
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