Kim Nothdurft

Lily's Fundraising Pad

Fundraising for International Foundation For Cdkl5 Research
US$1,525
raised of US$1,000 target
by 13 supporters
Donations cannot currently be made to this page
Event: Move CDKL5 Forward
June is CDKL5 Awareness Month and the IFCR is encouraging you to get out and MOVE! We are raising awareness and funds all month long to move CDKL5 research and our community forward! Will you join us? Help us reach our $100,000 goal!

Story

LilyAnna is our beautiful first born who is now 19 years old. Lily was born with CDKL5 deficiency disorder (CDD) and it has come with multiple complications that leave her reliant on us for everything. I am pledging to move my body every single day to stay mentally and physically strong for our girl and I ask that you join me as I try to reach the goal of $1000 (collectively $100,000) to ensure the future of CDD is better than it's present! 

About the campaign

June is CDKL5 Awareness Month and the IFCR is encouraging you to get out and MOVE! We are raising awareness and funds all month long to move CDKL5 research and our community forward! Will you join us? Help us reach our $100,000 goal!

About the charity

The IFCR is committed to funding research that will bring about treatments and a cure for CDKL5 Deficiency Disorder. We strive to raise awareness of this rare condition and to help CDKL5 families by providing them the resources they need to thrive. CDKL5.COM Hope | Love | Cure
Find out more about fundraising with JustGiving

Donation summary

Total raised
US$1,525.00
Online donations
US$1,525.00
Offline donations
US$0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.