110 %
£1,105.19
raised of £1,000 target
by 48 supporters
Donate
Lee Perkins avatar
Lee Perkins

I'm Running for ACT for SMA a wonderful charity very close to my heart

running the London Marathon 2017 for ACT for SMA for ACT for SMA because I want to support a fantastic charity (SMA Trust)

110 %
£1,105.19
raised of £1,000 target
by 48 supporters
Donate
  • In memory of: Louis Murdoch
  • Event: Virgin London Marathon 2017, 23 Apr 2017

ACT for SMA

The Ally Cadence Trust provides emotional and financial support to children affected by Spinal Muscular Atrophy Type 1, the leading genetic killer of under 2's with an average life expectancy of just 8 months. Children with SMA have very limited movement and may have breathing difficulties

Charity Registration No. 1133272

Story

Thanks for taking the time to visit my justgiving page 

I have the pleasure of running the London Marathon again this year. I am delighted to be running for an amazing charity The Ally Cadence Trust for Spinal Muscular Atrophy( SMA) 

This Charity protect and promote the physical and mental health of sufferers of spinal muscular atrophy and their families across the United Kingdom through the provision of support, education and practical advice and funding into research into the condition. 

Ally Cadence was the daughter of Emma and Karl the founders of Ally Cadence Trust for Spinal Muscular Atrophy (ACT for SMA) she died aged six months, just 12 days after being diagnosed in the 12 short days after Ally diagnosis, her family had a lot of support from NHS, but they never got to meet their allocated SAM support family, They would have been the one point of contact that could see things from a parents point of view and it was this that inspired Ally's parents set up ACT for SMA. They felt that parents with recently diagnosed children deserved a quick response for support and information. The answer was the Ally Cadence Trust.

I will be running the London Marathon on 23rd April 2017 to raise money for this fantastic charity. This Charity is very close to our hearts, because my cousin Louis Murdoch had this life limiting illness and we know first hand what a great charity this is. 

We want to help raise awareness and also give some financial help which will hopefully aid their research to finding better treatments or even one day a cure for SMA. 

Please help me raise money by donating generously for this Fantastic charity to allow them to continue in their incredible research. 

I will be aiming to run as fast as I possibly can ignoring any aches and pains thinking about the bravest most incredible little boy I have ever known my true Superhero Louis Murdoch  💙💙 


Photos

1

Supporters

48