💜 Osi was diagnosed with epilepsy in January 2025. His epilepsy is linked with another long term neurological condition called Neurofibromatosis 1 💜

For the first 9 months, Osi's seizures averaged out at 1 every 2 weeks. Osi is very fortunate that with daily medication the seizures are well managed, now only occasional.

💜💜 Osi and his siblings are walking, biking or rolling a mile or more every day for the first 26 days of March, finishing on 26th March, which is Purple Day, the International Day of Epilepsy awareness 💜💜.

Purple is also Osi's all time favourite colour. From 9 months old, he would work through boxes of wooden blocks or cars and find the purple ones!

🚲🚶‍♀️🚶‍♂️We plan to update daily with photo evidence! 🚶‍♂️🚶‍♀️🚲

If you'd like to join us on a walk, bike or roll over the 26 days, get in touch!

No child should live in fear of their own body. Seizures can be frightening and they can leave children in pain, feeling confused and alone. Nearly every hour, another child or young person in the UK is diagnosed with epilepsy. Show your support by donating today and help stop the fear of seizures. Breakthrough treatments and day to day support can transform their lives.

If you'd like to join me in the challenge then you can sign up here: https://www.youngepilepsy.org.uk/get-involved/challenge/26-miles-in-26-days-challenge