Story
Here's my story. ....
I was diagnosed in June 2013, I can't believe its over 4 years ago yet it still feels like yesterday.
I was first unwell in spring 2005. Those who knew me then might remember I was off work for 6 weeks. At that time I suffered from Vertigo, dizzy spells, sickness, water infection, chest pains and pains in my legs.
I called sick into work due to chest pains during the middle of the night, when I woke up in the morning the pain in my chest had subsided however I didn't feel 100 % I noticed when I put some body spray it hurt my legs!! I knew something wasn't right so I went to see my GP. He was concerned as the day before I had been to Scotland in the car. Due to having chest & leg pains he was worried that I might have thrombosis. He then told me that I need to go to hospital.
On this occasion they sent me for x-rays and a ultrasound on my legs, which the cold gel on my leg was really sore. I think the they thought I was an idiot saying it shouldn't hurt. Luckily I only stayed in hospital for the one night however a few weeks later I ended up back in, on a drip & feeling a lot worse.
On both occasions the doctors had no idea what was wrong with me.
I went back to work, after 6 weeks, which was a struggle going back to full time hours. Things still weren't right so my GP referred me to james hospital to see a neurologist.
The neurologist sent me for an MRI scan, the results came back and I was told I had scaring of the nerves. I had no idea what this meant, by this point everything was settling back down, so I accepted the diagnoses.
After 2005, I was tired all the time and my legs were always uncomfortable, and I had twitching. I never really thought anything more about it.
At the end of 2012 I started to feel pins & needles in my arms constantly. I then began to notice that the pins & needles were worse when I nodded my head down. At the start of 2013 I thought I better make an appointment with my GP. He sent me for x-rays and another MRI. I then had another appointment with a neurologist.
I went to see the neurologist, expecting to have a chat and to find out what the next step was. Multiple Sclerosis never crossed my mind. I was diagnosed with MS there and then 7th June 2013. A shock was an understatement. I went to this appointment on my own, expecting nothing more than a chat. I remember the day like it was yesterday. I cried all the way home. I didn't know much about MS, my head was all over the place. I couldn't see my mum, she was away on holiday. I had no intention on telling her while she was away, I had to wait nearly 2 weeks before I could tell her. I felt very alone, I only told a couple of people. I didn't want people to know. The day my mum returned from holiday I told her the news. I had all intentions in being strong, that failed.
Over the last few years I have had lots of ups & downs.
Looking back a lot of what happened in 2005 & since it all makes a lot more sense.
My symptoms now vary which include fatigue, pins & needles, lack on concentration, memory issues, bladder problems, blurry vision, depression, ms hug, weakness, tightness, brain fog, virtigo, dizziness & feeling light headed, much more emotional, can cause me pain & many more symptoms. That's the thing with MS it can affect us in so many different ways. There's no way of knowing which nerve it will attack next
MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full.
https://www.facebook.com/sheenaMS/
MS-UK put people affected by MS at the heart of the work that they do. They provide high quality, professional services to support people living with multiple sclerosis, and they listen to people affected by MS.
I was diagnosed in June 2013, I can't believe its over 4 years ago yet it still feels like yesterday.
I was first unwell in spring 2005. Those who knew me then might remember I was off work for 6 weeks. At that time I suffered from Vertigo, dizzy spells, sickness, water infection, chest pains and pains in my legs.
I called sick into work due to chest pains during the middle of the night, when I woke up in the morning the pain in my chest had subsided however I didn't feel 100 % I noticed when I put some body spray it hurt my legs!! I knew something wasn't right so I went to see my GP. He was concerned as the day before I had been to Scotland in the car. Due to having chest & leg pains he was worried that I might have thrombosis. He then told me that I need to go to hospital.
On this occasion they sent me for x-rays and a ultrasound on my legs, which the cold gel on my leg was really sore. I think the they thought I was an idiot saying it shouldn't hurt. Luckily I only stayed in hospital for the one night however a few weeks later I ended up back in, on a drip & feeling a lot worse.
On both occasions the doctors had no idea what was wrong with me.
I went back to work, after 6 weeks, which was a struggle going back to full time hours. Things still weren't right so my GP referred me to james hospital to see a neurologist.
The neurologist sent me for an MRI scan, the results came back and I was told I had scaring of the nerves. I had no idea what this meant, by this point everything was settling back down, so I accepted the diagnoses.
After 2005, I was tired all the time and my legs were always uncomfortable, and I had twitching. I never really thought anything more about it.
At the end of 2012 I started to feel pins & needles in my arms constantly. I then began to notice that the pins & needles were worse when I nodded my head down. At the start of 2013 I thought I better make an appointment with my GP. He sent me for x-rays and another MRI. I then had another appointment with a neurologist.
I went to see the neurologist, expecting to have a chat and to find out what the next step was. Multiple Sclerosis never crossed my mind. I was diagnosed with MS there and then 7th June 2013. A shock was an understatement. I went to this appointment on my own, expecting nothing more than a chat. I remember the day like it was yesterday. I cried all the way home. I didn't know much about MS, my head was all over the place. I couldn't see my mum, she was away on holiday. I had no intention on telling her while she was away, I had to wait nearly 2 weeks before I could tell her. I felt very alone, I only told a couple of people. I didn't want people to know. The day my mum returned from holiday I told her the news. I had all intentions in being strong, that failed.
Over the last few years I have had lots of ups & downs.
Looking back a lot of what happened in 2005 & since it all makes a lot more sense.
My symptoms now vary which include fatigue, pins & needles, lack on concentration, memory issues, bladder problems, blurry vision, depression, ms hug, weakness, tightness, brain fog, virtigo, dizziness & feeling light headed, much more emotional, can cause me pain & many more symptoms. That's the thing with MS it can affect us in so many different ways. There's no way of knowing which nerve it will attack next
MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full.
https://www.facebook.com/sheenaMS/
MS-UK put people affected by MS at the heart of the work that they do. They provide high quality, professional services to support people living with multiple sclerosis, and they listen to people affected by MS.