In loving memory of Eliza Rose Thompson Richardson. 

The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure; To raise much needed awareness of these conditions both in the general population and the medical community; To support families affected by this condition.

Thank you for taking the time to visit our just giving page, and for all your support and donations.

Kaylie, Jacob, Jamie, Paul and Ange x