I will be running 10k at Cosmeston lakes in October 2023, a little later than originally intended,  to raise money and awareness of Ty Hafan (a local children's hospice), in memory of my beautiful daughter Emilia who sadly lost her battle with life in September 2019 just two months after celebrating her 8th birthday. I will be running with a group of friends both old and new.. some of whom have never run before but have been inspired to do so in Emilia’s memory. 

Emilia was diagnosed with a rare brain degenerative disease. Thankfully up until the last 9 months of her life, she led a fairly ‘normal’ life. She loved going to school everyday. Loved everything pretty-rainbows, butterflies, unicorns and sparkles. Singing and dancing around the house a particular favourite, playing schools with her brave little sister Nell for hours and spending time with her close friends. She made friends wherever she went and had the most beautiful smile and infectious giggle that will stay with me forever. 

Unfortunately following surgery Christmas 2018, Emilia deteriorated considerably. She lost the use of her legs, she was unable to eat anything orally, she would regularly have seizures and required 24 hour care. Days and nights were unbearable, completely heartbreaking and so painful to watch our beautiful, kind, caring girl suffer so much. She rarely complained and always had a smile for those she loved, of whom there were many. 

Ty Hafan have been an incredible support to us through this time and following.  I took a step back from my job to care for Emilia full time, the days when the therapists came meant so much to us both and always managed bring a smile to her face. Emilia’s particular favourites were Abi, the complementary therapist and Sarah, the play therapist, who both helped to make her days more comfortable and fun, I will be forever grateful to them. 

Ty Hafan also made it possible for Emilia to stay at home with us for 36 hours after she had passed, which gave us as a family so much comfort and enabled friends and family to say their goodbyes. I really feel this time also helped Nell a great deal in processing everything. All staff we have met have been so special, kind and caring, just what was needed when going through such times. 

By running the 10K with my friends, I would love to be able to help put back something into Ty Hafan, so that they can continue to provide the amazing support they do for children and their families. I know they are currently trying to raise £1.5 million to refurbish this special place; hopefully this fundraising will help them to achieve their goal.