April's Toby and daisy's ski challenge

April Lee is raising money for Child Growth Foundation
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Toby and daisy's ski challenge · 28 December 2017

The Child Growth Foundation makes a difference wherever growth is a concern. We are a UK charity focusing on the support, understanding and management of rare growth conditions to improve the lives of children, young people, adults and families affected.

Story

Child growth foundation has been a massive support to our family. Toby was diagnosed with a growth condition in pregnancy. He has a growth injection to grow and build up his muscel tone. The charity uses donations to fund research into conditions - diagnosing clinically and genetically and treating. Professionals are given guidelines making referrals easier. Public is educated.

Toby will ski the height of Mount everest. This is 8,848m at mendip ski slope.

Daisy height of Mount kilimanjargo from sea level. Is 5,895m. She is only 8 and having the desire to keep going proved tricky as she's easily distracted.

This will be a challenge for Toby, he is known to physio services. He was 1st seen at 2 months old untill the age of 19 months when he learnt to take steps. He was refferred again at 5 as he could not jump, lean out of his midline, coordinate himself properly and got tired quickly and was unable to walk far. After a year of intense physio at school and home he was in good shape. A referral was made a year ago. He was again diagnosed with generalised low core strength. He tired very easily and walking longer than usual distences caused him pain. He has generalised hypermobility and hyer extention  of knees and elbows. This puts him at risk of injury if his joints are not stable. His stomach muscles also came apart. After physio activities and being extremely active he is again in good shape. We haVe to keep this level of activity up to ensure good development. Skiing is so good for him and he is actually quite good when his body is capable of doing it.  

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Donation summary

Total
£950.00
+ £175.00 Gift Aid
Online
£950.00
Offline
£0.00

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