Thanks for taking the time to visit my JustGiving page.

Our little boy Harley was born with a rare genetic disorder called Neurofibromatosis type 1 (NF1) . May is Neurofibromatosis (NF) awarness month so I am hoping to raise awareness of NF whilst also fundraising for the Childhood Tumor Trust who is a charity that bring children and young people with Neurofibromatosis and their families together whilst also providing support.

Neurofibromatosis Type 1, is a genetic disorder characterized by the development of multiple tumors of nerves on the skin, brain and spinal cord (neurofibromas) and areas of abnormal skin color (pigmentation) in the form of pale, coffee-coloured patches (café au lait spots), clusters of freckles in unusual places and problems with the bones, eyes and nervous system. Certain health problems are often associated with NF1, such as learning disabilities like problems with reading or mathematics. Attention-deficit/hyperactivity disorder (ADHD), Autism and speech delays also are common.

I would really appreciate it if you could like, save and share our posts to help raise awareness on the condition and donate via the just giving page if your in a position to do so. If you would like be apart of this fundraiser to help raise money for the charity yourself then please do let me know ☺️

Talking about Harleys condition is difficult and it's taken me a long time to pluck up the courage to speak openly about it, thank you for you support.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.