This is for my friend's daughter Lili. They live in UK. Please donate whatever little you could. I am trying to help my friend to create awareness. 

Lili is suffering from SYNGAP1. 

The aim is to provide support, education, and resources. Families will take away valuable knowledge intended to reach treating clinicians of SYNGAP1 patients and give families and caregivers a sound knowledge base of the disease and how to best approach available treatments.