Families will take away valuable knowledge intended to reach treating clinicians of SYNGAP1 patients and give families and caregivers a sound knowledge base of the disease and how to best approach available treatments.
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Supporting the vital research the team at Edinburgh are undertaking we also need to secure funds for the Annual conference that brings the families together, and the leading clinicians/experts in their fields present findings / updates back to parents.
Initially I started just myself about target of 200 miles cycling. But friends joined to extend to 500 miles and my family joined to make it 1000 miles target by cycling,walking,running and swimming in July 2020. We managed 2450.65 miles - July 2020.
We are comitted to duplicate the same effort this year July 2021.
Anyone can join us and help us by chipping few miles or donate/sponsor us to motivate. More team members = More miles = More shares = More donations = obviously more awareness.
Massive well done to all friends and family👍🏽
More info about the condition - https://uce0d01d765b05e762d45afdd8ed.dl.dropboxusercontent.com/cd/0/get/A65ZRgQE7AuTX6A8-US-hyVBmTHok5kEIdaZz9hx7fIxPffJ1zb4fLDs1_10dlS3RKkVrTPlBr0fhKmesLKnrT8LC-w1z-TuOn4BXYnQc0J4WzaqJMAPLP0i5aFnha51nV8/file?dl=1
Families will take away valuable knowledge intended to reach treating clinicians of SYNGAP1 patients and give families and caregivers a sound knowledge base of the disease and how to best approach available treatments.
You can choose from a variety of Edinburgh projects to Fundraise Your Way for. All the money you raise is processed through the University of Edinburgh Development Trust (reg charity SC004307) ensuring 100% received goes directly to the cause you care about and put to use straight away. Thank You.