Carl Darby

Carl's page

Fundraising for Ring20 Research and Support UK
£3,195
raised
by 77 supporters
Donations cannot currently be made to this page
Event: Great Birmingham Half Marathon 2023, on 7 May 2023
We promote research, education & support to end un- and misdiagnosed r(20) epilepsy

Story

As many of you will know, Lily, my youngest daughter has Ring20 Chromosome Syndrome.  Symptoms include intractable epilepsy (10+ seizures per day is not unusual) and learning and behaviour difficulties.  She is an absolute star, a fighter....nothing holds her back.  Her resilience is on another level.

Ring20 Research and Support UK do a huge amount for people with R20 syndrome.  From family support & information sharing to partnerships with Global Research Organisations, working towards a cure, a small donation goes a really long way to help.  

Any donation is hugely appreciated.

Thank you.



About the charity

Supporting individuals, families and healthcare professionals who are affected by, or who come into contact with Ring Chromosome 20 Syndrome or r(20) – a rare epilepsy syndrome. We provide information via our website www.ring20researchsupport.co.uk, social media and events and promote research.

Donation summary

Total raised
£3,194.39
+ £656.96 Gift Aid
Online donations
£3,194.39
Offline donations
£0.00

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