Emmy has been in training and building her fitness on the treadmill over the past few months.  She has made fantastic progress and isn't letting her condition of Bardet Biedl Syndrome stand in her way.  It's difficult for her running outside due to her lack of vision but despite this she is taking part in a 5km colour run to raise funds for BBS UK.  As a family we are taking part alongside her, to guide, support and hopefully help her raise much needed funds for the BBS UK charity.  This charity has shown us much support ever since Emmy's diagnosis over 11 years ago and for this we are very grateful.   We’d like to be able to raise funds to enable the charity to keep supporting others in the same way.

We hope Emmy's taking part in this event will inspire others to get out there and see what they can achieve too.  Her exercise is helping her to be fit and healthy enough to grab opportunities to learn and travel and helps her remain positive despite being registered blind and how her condition affects her on a daily basis.  

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