Story
Low grade serous ovarian cancer is a rare and under-researched disease. It affects young women and is resistant to standard treatment. At the Edinburgh Cancer Research Centre we are screening panels of new drugs in the laboratory in order to identify those most likely to be beneficial in the clinic.
Low grade serous ovarian cancer is a rare and under-researched disease. It affects young women and is resistant to standard treatment. At the Edinburgh Cancer Research Centre we are screening panels of new drugs in the laboratory in order to identify those most likely to be beneficial in the clinic.
Most will know my story, but those who don’t here’s my story.
I am Living with incurable ovarian cancer.
2016 -I was diagnosed with low grade serous carcinoma. Which is a rare form of ovarian cancer. I had major debulking surgery including full hysterectomy, bowel reconstruction, liver scrapping.
2017 -I did a round of chemotherapy - even though this type of cancer is resistant, but in the hope it would kill whatever was left from surgery. Then put on letrozole to try and stop it from re-occurring.
2018 - I had a reoccurrence which scans showed 2 tumours one in side and groin.
Surgery didn’t go to plan..
2019 - an appointment in Southampton and pet scan showed that there was another tumour in my chest close to my heart.
Discussion in removing the one on chest would be impossible, the other tumours would be very complicated on advise from oncologist weighing up decision was best to leave to be able to live the best quality of life I can.
New hormone therapy drug was given to try an slow progress.
2020 - disease had progressed. Radiotherapy was given to try even though it’s not option in this type of cancer.
2021 - gone 3 months with it being stable, then this month which being ovarian cancer awareness month too . I got the news one in groin has progressed 😢.
So now I’m on a trial drug trametinib to see if that helps stop / slow growth.
I vowed to fundraise every year I’m able too. So this years fundraiser is im climbing scafell pike.
Every penny helps to fund research for the rare cancer that is hard to treat with limited treatment options.
Thank you
I am Climing scafell pike 12th June 2021