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255 %
£3,826.52
raised of £1,500 target
by 90 supporters
Clare Murray avatar
Clare Murray

Clare's London Marathon Fundraising!

Fundraising for The Maddi Foundation

255 %
£3,826.52
raised of £1,500 target
by 90 supporters
  • Event: London Marathon 2019, 28 Apr 2019

The Maddi Foundation

We raise funds for SPG15 medical research to find a cure for this rare disease

Charity Registration No. 1174374

Story

Thanks for visiting my page!

I have finally managed to get a place in the London Marathon which means I actually have to run 26.2 miles, I've only been saying I'll do it for 7 years.....

I've always wanted to run London but do it for a charity of my own choosing, and I'm so happy to be raising money for Maddi Foundation.  As well as being a fantastic charity it's also one that's very close to my heart with a personal connection, as Maddi is a friends sister.

The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling Spastic Paraplegia Type 15 (SPG15), a degenerative neuro disease. Symptoms present themselves generally in early teens causing paralysis in the limbs with progressive brain abnormalities resulting in loss of nerve cells, visual impairment and possible juvenile Parkinson's. This is a genetic type of motor neuron disease. To date there is no cure or treatment! 

Conditions this rare receive very little attention and funding so with your help we can try to change this so our children can have a brighter future.

Training has started well but I would really appreciate if you could sponsor me to encourage me even more.  Every penny helps, but please dig deep as it's going to such a worthwhile cause!!

Wish me luck!! :)

Photos

1

Supporters

90