The Five Peaks Challenge page

I will be taking part in the Five Peaks Challenge for The Maddi Foundation because we need to find a cure for the rare disease SPG15

26 %

£400.00

raised of £1,500 target

by 31 supporters

Event: The Five Peaks Challenge, 19 Jun 2020 to 21 Jun 2020

The Maddi Foundation

We raise funds for SPG15 medical research to find a cure for this rare disease

Charity Registration No. 1174374

Story

I'll be going up and down the highest mountains in Wales, England, Scotland, Northern and Republic of Ireland in 48 hours! I am taking on this challenge to raise funds for The Maddi Foundation.

Having completed the Three Peaks Challenge in September 2018 for the Maddi Foundation, I wanted to do another challenge, one that would push me even further and raise more money to help with the research to find a cure for SPG15.

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Supporters

About the charity

The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling Spastic Paraplegia Type 15 (SPG15), a degenerative neuro disease. Symptoms present themselves generally in early teens causing paralysis in the limbs with progressive brain abnormalities resulting in loss of nerve cells, visual impairment and possible juvenile Parkinson's. This is a genetic type of motor neuron disease. To date there is no cure or treatment! Conditions this rare receive very little attention and funding so with your help we can try to change this so our children can have a brighter future. The Maddi Foundation aims to continue to support medical research to help cure this disease and also help other similar rare diseases.

Charity Registration No. 1174374

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