Dave Fleming

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Fundraising for Harry's Hydrocephalus Awareness Trust (Harry's HAT)
£913
raised of £500 target
Donations cannot currently be made to this page
Event: London Landmarks Half Marathon 2023, on 2 April 2023
We want every new parent to understand why it is so important that their baby's head is measured. An estimated, 1 in every 770 babies will develop hydrocephalus each year. 'Get-A-Head' will help those with symptoms get treated sooner.

Story

Harry's Hydrocephalus Awareness Trust (Harry's HAT) is  a small charity set up by Caroline and Matt, the parents of Harry, who, like my son Lucas, suffers with Hydrocephalus. 

Lucas developed Hydrocephalus at 3 months, a condition that means that he cannot drain fluid from his brain. Currently, the only solution to this is to have a shunt fitted and since he first had the shunt put in, he has had to have another 25 neurosurgical operations. 

We were very lucky that Lucas was diagnosed whilst in A&E for another issue, but babies will only be diagnosed quickly and effectively if their heads are measured properly after their birth. This is why babies heads are measured and recorded after birth. Very few people know this, I didn't. 

Like most conditions, the earlier they are found, the better the outcome. If parents knew that there is a 1 in 770 chance of their baby having hydrocephalus and that head circumference measurement is a vital tool for finding it, then they would push to make sure their baby gets measured. 

Your donation will support a vital campaign to help highlight the importance of head measurements to all new parents by producing information cards. 

Thank you. 

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About the campaign

We want every new parent to understand why it is so important that their baby's head is measured. An estimated, 1 in every 770 babies will develop hydrocephalus each year. 'Get-A-Head' will help those with symptoms get treated sooner.

About the charity

The aim of our charity improve the lives of children and their families affected by hydrocephalus (water on the brain). Every year 1 in every 770 babies are born with the condition and many more children acquire it.

Donation summary

Total raised
£912.81
+ £155.00 Gift Aid
Online donations
£912.81
Offline donations
£0.00

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