Harry's Hydrocephalus Awareness Trust (Harry's HAT)


We want every new parent to understand why it is so important that their baby's head is measured. An estimated, 1 in every 770 babies will develop hydrocephalus each year. 'Get-A-Head' will help those with symptoms get treated sooner.
raised of £20,000 target
RCN 1183086

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Do you know why health workers measure your baby's head? Chances are, like 60% of our Instagram poll, you're not quite sure.

Babies' heads are measured to look for unusual growth, which can signal life-threatening conditions such as hydrocephalus. Hydrocephalus is similar to most conditions in that, the earlier it's found, the better the outcome.

We believe that if parents knew that around 1 in every 770 babies will develop hydrocephalus each year, and that head circumference measurement is a vital tool for finding it, they would push to make sure their baby gets measured.

Your donations will enable us to launch 'Get-A-Head' - a

vital campaign to highlight the importance of head circumference measurement to all new parents, via clear and concise information. This includes: printing 450,000 information leaflets, commissioning 30 large posters to be placed in Buses and or Tube Trains as well as the hosting of an online resource so people can learn more.

The information that we will produce will focus on WHY head measurement should be done. It will also highlight SIGNS of hydrocephalus such as:

A large head, very visible veins on the forehead, a baby who whose head is far to big for the hats for their age group, parents who say their baby's head can't fit through the head space in the baby grow and/or the baby's head circumference measurement crossing percentile lines when plotted on a growth chart (often the red book), over time.

If you can't donate, you can still help. Please share the importance of head circumference measurement with any new parent you know.

You could literally save a life.

About the charity

The aim of our charity improve the lives of children and their families affected by hydrocephalus (water on the brain). Every year 1 in every 770 babies are born with the condition and many more children acquire it.

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+ £561.83 Gift Aid
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