Thanks for taking the time to visit my JustGiving page.

My 3 year old son Daniel suffers from a rare genetic terminal condition called Cystinosis. 

To the outside world Daniel is a perfectly healthy intelligent child, but daily, we fight the fear of his body internally harming itself.  Daniel must take a range of medications to improve his prognosis and quality of life, although kidney failure is inevitable and overall long term prognosis is poor.

The money raised by our challenge will help fund research into more effective treatments and even possibly find a cure.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.