I’m hoping to raise £500 to show my support for 'Love for Louis'

Louis was born in December 2014 but at only a few weeks old Lucy, his mum, noticed something wasn’t quite right. 18 months later Louis was diagnosed with an extremely rare genetic condition, Congenital Disorder of Glycosylation (CDG): PM22 1A; meaning he has physical and cognitive disabilities, including speech and language difficulties, developmental delay, failure to thrive and severe susceptibility to infection.

This means Louis needs 24/7 care and it’s exhausting for Lucy to do this on her own. Her biggest challenge is the lack of NHS support and respite care which means daily activities are much harder than need be.

Your donation will make such a difference and help towards on-going therapy and the purchase of essential equipment to improve Louis’ standard of living. It will also help pay for an extra pair of hands to help Lucy with overnight cover, fund special days out for Louis e.g. trips to the seaside and with your support you will be giving a little boy with big challenges the best shot at life.

I will be running a 100km non stop ultra marathon along the Jurassic coast from Poole to Bridport.

Thanks for your donation and support!

To find out more about Louis and to follow his incredible progress please like, follow and share his Facebook page ‘Love for Louis’.