Story
On 30 September my mum (Wee Jude), sister (Emma) and I will be taking part in the Great Scottish Run. It will be my mums first ever 10k and my first half marathon so hopefully we will be able to finish!!
We will be raising funds for MPS Society, a charity that is very close to our hearts since my two sons, wife and wider family were diagnosed with fabry disease last year. Fabry is a rare genetic condition that leads to the failure of key organs in early life and similar to other rare diseases it often doesn't get the attention or funding that it needs.
MPS Society works tirelessly to support families with Fabry and other enzyme deficiency disorders through raising awareness, driving research in to new and improved treatments and providing invaluable ongoing support to families.
We will also be running in memory of my late father-in-law, Jim, who had Fabry but was never diagnosed and never had the opportunity to get treatment; highlighting the importance of raising awareness around these conditions and increasing the chances of early diagnosis.
Any contributions that you can give to this very worthy cause would be greatly appreciated