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£330.00
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Ed Derbyshire avatar
Ed Derbyshire

Ed is running for Sophie again!

I am running the Great South Run for ACT for SMA because they support children with SMA type 1

132 %
£330.00
raised of £250 target
by 8 supporters
Donate
  • Event: Simplyhealth Great South Run 2018, 21 Oct 2018

ACT for SMA

The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

Charity Registration No. 1133272

Story

My granddaughter, Sophie, had SMA Type 1 and passed away in 2016 aged 10 months. She was a real character and we all miss her terribly. So, having run the last two Great Souths, I thought I would do another one for her and help raise funds for ACT for SMA. Thank you for any support you can give. It is really appreciated.

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Supporters

8