Emily Feiler's Fight

Kelly Sayers is raising money for Great Ormond Street Hospital Children's Charity

Team: Emily Feilers Fighters

“Emily Feiler's Fight”

on 17 November 2021

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We are Great Ormond Street Hospital Charity. We stop at nothing to help give seriously ill children childhoods that are fuller, funner and longer. Because we believe no childhood should be lost to illness.

Story

In the midst of the Covid-19 pandemic our beautiful and unique daughter Emily was diagnosed with an ultra-rare, life-limiting, neurodegenerative disorder called BPAN.

Devastating doesn't even come close to describe this situation, but we have hope that the incredible GOSH team will come through for us and hundreds of other BPANners.

I am going to run 30km every week and volunteer my time to charities at least once a week until the target is reached. 

Please help us to keep Emily moving forwards and never reaching the degenerative phase of this awful disorder. 

We would be forever grateful for your generosity ❤️

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Donation summary

Total
£51,184.72
+ £5,731.25 Gift Aid
Online
£41,184.72
Offline
£10,000.00

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