Kelly Sayers

Emily Feiler's Fight

Fundraising for Great Ormond Street Hospital Children's Charity
raised of £50,000 target
by 446 supporters
Emily Feiler's Fight, 17 November 2021
We help the hospital offer a better future to seriously ill children across the UK


In the midst of the Covid-19 pandemic our beautiful and unique daughter Emily was diagnosed with an ultra-rare, life-limiting, neurodegenerative disorder called BPAN.

Devastating doesn't even come close to describe this situation, but we have hope that the incredible GOSH team will come through for us and hundreds of other BPANners.

I am going to run 30km every week and volunteer my time to charities at least once a week until the target is reached. 

Please help us to keep Emily moving forwards and never reaching the degenerative phase of this awful disorder. 

We would be forever grateful for your generosity ❤️

About the charity

We fundraise to enhance Great Ormond Street Hospital’s ability to transform the health and wellbeing of children and young people. Donations help to fund advanced medical equipment, child and family support services, pioneering research and rebuilding and refurbishment.

Donation summary

Total raised
+ £5,703.75 Gift Aid
Online donations
Offline donations

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