💜 From Dusk Till DEBRA! 💜

On the 29th of May throughout the night we will be doing a sponsored walk to raise money for those suffering with EB, starting at 8.30pm-4.30am, from Dusk till Dawn. We aim to raise money for reasarch to one day hopefully stop this heartbreakingly painful skin disease and spread awarnes of EB so that people and familys living with Epidermolisis Bullosa feel united and supported.

Sadly for people living with EB blistering and tearing of the skin can be caused from the slightest touch due to the skin being so delicate, just as delicate as a butterfly wing. Due to this, the name Butterfly children is used in relation to how fragile the skin is but also for how truely beautiful and inspiring people with EB are. There are different varients of EB and in some cases it is fatal. There is no cure and the charity relies on funds to help support familys and research so hopefully one day there will be an end to this truly awful skin condition.

💜DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community.Together we #FightEB and together we will beat EB 💜