💜 From Dusk Till DEBRA! 💜

On the 29th of May through out the night we will be doing a sponsored walk from 8.30pm to 4.30am from dusk till dawn in support of those suffering with EB. We aim to raise money for reasarch to one day hopefully stop this heartbreakingly painful skin disease and spread awarnes of EB so that people and familys living with Epidermolisis Bullosa feel united and supported.

People born with EB will experience blistering and tearing of the skin that can be caused from the slightest touch due to the skin being so delicate, just as delicate as a butterfly wing. Due to this, the name Butterfly children is used in relation to how fragile the skin is but also for how truely beautiful and inspiring people with EB are. There are different varients of EB and in some cases it is fatal. There is no cure and the charity relies on funds to help support familys and research to hopefully one day there will be no more of this awful skin disease.

DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We fund pioneering research and provide care and support to individuals and families living with EB.Together we are stronger, lets fight EB 💜!