14 %
£1,622.00
raised of £11,200 target
by 15 supporters
Donate
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FRP Advisory

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Fundraising for The Maddi Foundation

14 %
£1,622.00
raised of £11,200 target
by 15 supporters
Donate
  • Team members: Amy Coppen, Anna Furie, Alex Thurgood, CJ Watson, Claire Huartson, Clive Madden, Craig Brown, Emma Priest, Eric Binks, Gina Hall, Glyn Mummery, Neil Miller, Steve Jones, Victoria Copeland
  • Event: FRP Advisory LLP Three Peaks Challenge, 21 Sep 2018 to 23 Sep 2018
  • Team: FRP Advisory 3 Peaks Team

The Maddi Foundation

We raise funds for SPG15 medical research to find a cure for this rare disease

Charity Registration No. 1174374

Story

FRP Advisory Brentwood are raising funds for The Maddi Foundation. We will be completing the 3 peaks challenge within 24 hours, commencing on 22 September 2018.

The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling Spastic Paraplegia Type 15 (SPG15), a degenerative neuro disease. Symptoms present themselves generally in early teens causing paralysis in the limbs with progressive brain abnormalities resulting in loss of nerve cells, visual impairment and possible juvenile Parkinson's. This is a genetic type of motor neuron disease. To date there is no cure or treatment! 

Conditions this rare receive very little attention and funding so with your help we can try to change this so our children can have a brighter future. The Maddi Foundation aims to continue to support medical research to help cure this disease and also help other similar rare diseases.



Photos

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Supporters

15