Liberty's Legacy are thrilled to be one of the chosen charities for the GX FunRun in May 2022, a 5km race on closed roads around Gerards Cross.

As many of you know, we sadly lost our daughter Liberty in October 2017 after she fought a courageous battle with Ewing Sarcoma, a rare and very aggressive form of primary Bone Cancer. She had just celebrated her 14th birthday and our lives have been changed forever -  she has left a gaping hole that cannot be filled.

Throughout her treatment, Liberty was as an inspiration to so many with how bravely and valiantly she faced everything thrown at her, from gruelling chemotherapy, hair loss, chronic nausea and biopsies, to limb salvage surgeries, radiotherapy and a stem cell transplant. She refused to let this cruel disease define her and the smile for which she was so well known and her wicked sense of humour rarely faded, despite everything she had to endure.

When Libs discovered that the cancer had spread and that nothing further could be done, her greatest wish was not only to not be forgotten,  but for no other young person or family to suffer as she had, nor to be ripped apart from their family in the same way.

And so her idea for Liberty's Legacy was born to raise awareness and vital funds for Ewings research in her name. Since February 1st 2018, Liberty's Legacy has been a special fund of the Bone Cancer Research Trust, with all monies raised ring-fenced specifically for research into Ewing's, as was Liberty’s wishes.

The funds raised to date, which as of April 2022 exceed £550,000, have already helped to fund several exciting research projects. But we know it's just the tip of the iceberg and that so much more needs to be done - every penny raised really does count and will make a difference, if we are to change the landscape for future children diagnosed with this brutal disease.

Survival rates for Ewing's have not improved in nearly 40 years and the treatment protocol that Liberty received was not only designed for adults, but was decades old. Yet last year research funding for primary bone cancer from the larger cancer charities was at an 18 year low, representing just 0.028% of the overall cancer research budget. With your help we urgently need to change this, so that children like Liberty have a fighting chance - she had so much to offer and deserved so much more.

So on May 22nd we will be donning our bright orange Bone Cancer Research Trust tops with pride and many of #TeamLibs will also be sporting butterfly wings in Lib's memory - from a very young age she was absolutely mad about butterflies!

The whole family want to say a HUGE thank you to all the runners who have agreed to join us and be part of #TeamLibs, we are genuinely so touched, it honestly means the world.

Liberty Grace Schurer, you are so deeply missed, more that you will ever know, and our hearts are forever broken. We love you to the moon and back, forever, and always will. I know you will be there by our sides on race day, supporting us just as you always have. We are determined to honour your amazing Legacy and will keep on fighting and raising funds in your name...#UntilTheresACure

Love forever, Mum, Dad, Liv & Bertiexx

Thank you for reading and thank you for donating. To find out more about Liberty's Legacy, please follow us on Facebook @libertyslegacycharity or Instagram @ Libertys_Legacy

The Bone Cancer Research Trust is dedicated to saving lives & improving outcomes for people affected by primary bone cancer. Despite being small, they fund more research projects exploring primary bone cancer than any other organisation. Other large UK cancer research charities do not prioritise bone cancer patients, in 2019 just 0.028% of their research spend went to bone cancer – not even close to 1%! Last year alone, Bone Cancer Research Trust committed an incredible £807,824 to pioneering bone cancer research - to save lives!